堅持信靠的Brian's Blog

Dear prayer warriors,

Dear Prayer Warriors,

Brian is in CHLA doing 3rd dose of chemo now. It started last night.
But the fever happen this morning. They said that's very common for this kind of chemo arac.

His platelet grow by itself during the week we were home from 17k to 30k.
They gave him platelet before installing the PICC line for him becaus it require 50K to do the procedure.
As I said that the hospital schedule sometime change, we need to has the flexibility to adjust ourselves to work with it.
The NPO ( no food for 8 hours started at 4am.) for anesthesia plan changed after the Child Life Ashley came in to convience Brian to do it awake. Brian agreed to do
it without sleeping. It took around 30 minutes to do that procedure this afternoon.
The PICC line installation keep bothering me since they pull out his PICC line last time. I don't know why God Guided me to go to downstair to ask Brian's medical history report while he was doing that procedure
I noticed a very special painting when I talked to the staff. It said " Your helping hands in HIM ". Wow! It is. There were at least 10 helping hands in that room to help him. The procedure was done successfully after 30 minutes. I didn't really need those history report for it will takes few weeks. I just came to that room to see that picture. God is so true! Thanks Lord.

Now the day2 chemo dose 1 is running. It will done tomorrow. The fever is bothering Brian now.

Let's pray for Brian
1. His body can tolerate the chemo and the fever will go away after that.
2. This chemo will destroy all the left leukemia cell.

Let's shift our focus from this limited realm and start looking at God’s supernatural realm, we’ll see His unlimited possibilities for Brian's future.
Take the limits off by setting our thoughts on what Almighty God can do in our life.

In Jesus name, Amen!

God bless you,

Mark & Anita

Dear prayer warriors,

Brian had checked in CHLA this afternoon. We are in the hospital room now.

3:00PM.  On the way home from hospital, we called Sherri ( Brian's case manager) to ask her email the detail CBC lab report and also the cytogenic.    She said, " Dr. Gaynon said you can do what ever you want now.    The same chemo will start next week.   You can celebrate your birtheday at home."

Aug. 12 is Brian's 18 Birthday.     There are so many people to invite to see and talk.

Brian's childhood buddy Ken and family came from Taiwan.   2 families and friends (Dr. Gordon and Mia from Irvine)  had a good dinner time at home.      2 doctors ( Uncle Simon & uncle Gordon)  concerned Brian's recovery.   " Are you tired ?",they asked.    But Brian was too excited to have so many good friends to enjoy.    won't be tired at all.

 Memories from old pictures,  fun and joy tallk.   All of us never felt tired and didn't want to finish.

We experienced how God planed all of the people around us long ago.    He made us know each others to work for His good.

God directed uncle Gordon appeared in our life again after he met Ken's mom ( Li-Xiang) 2 month ago in Taiwan.

Long story short, God sent Dr. Gordon came to our life to use his medical profession and his compassion in God to accompany Mark, Brian, and me to pray together in so many nights to encourage and ensure hope, peace, and joy to our heart.    Everything work together for His good.

Just as all of you come to this blog and pray for us in this journey.   It all comes God's good work.

May God bless all of us more abundantly.

Hallelujah!

We just left the recovery room and went to clinic to see Dr. Gaynon. .

He said, "Good news. There's no leukemia cell.   It's Remission. You can go home now. Thanks, you made my day. I'm happy!"

Thanks all of your faithful prayer. You guys made our day too.
Praise and glory to the Lord!

God bless us all.

Brian is in OR room now.

Please keep praying for the best.

Thank you.

God bless.

We are waiting to go to OR bone marrow aspirate and biopsy procedure in minutes.

Please pray for the medical team to do the procedure smoothly and successfully.

God is in control. God reminds me to double check the procedure detail and they didn't order biopsy.

Thanks God to let me notice it and also thanks our primary Dr. Gaynon.
I heard that he talked to nurse that he didn't come to this OR floor in 14 years. He came to see Brian because he didn't see him and his lab report since last Thursday.    He also asked us to sign a consent form to draw extra tube of bone marrow for research study in case he needs to use another new drug for next chemo if the test see bad cell.       Dr. Gaynon said," Brian's looks good and his blood report shows good too.   But we never know how's the inside except the sample.      If it is remission, then we throw away this extra bone marrow." .  

  I reply immediately, " God is good.   It will show Remission.    We keep praying."

There is no fever at Saturday and Sunday after Infectious disease Dr. Ross changed the antibiotic.

Thanks for your prayer.

They check Brian's blood everyday.

And today his platelet is too low (10K). They will give him platelet later.   Pray for no allergic reaction.

PICC line installation will not be schedules until his fever was cleared after 24 hours.    Since Brian had a fever this early morning, they said it need to be observed and wait until his temperature is stablized.    Probablly Wednesday or later.

They use temperatary IV to give him med.   But drawing blood will need to poke him everytime they do.   That's why the PICC line play an important roll during his hospitalization.

These few days, his bonemarrow is starting to produce some white cell and red.    His blood type has changed to Vivain's A+.

Pray for Vivian's new marrow in Brian's body can grow quick and healthy.    No more Leukemia.    Remission!

Please keep praying.   Thank you.

 God bless you,

Mark & Anita

Brian is doing better today. He had fever from Monday. They check many thing but all the virus and bacteria test came out negative. 

Finally the infectious diseases Dr. Ross came yesterday at 3:30pm. while Brian was starting to shiver and chill.
He changed the antibiotic to different med. at 5pm.
It worked good, I think.
Because the fever and chill happened less after that change.
They also found out his "PICC" line is in the wrong place through CT scan 2 days ago. The PICC line was installed a month ago the day we checked in.  It is possible this was the cause of shivering fever.    The nurse MJ just take out this PICC line now.

There are some other possibilities caused this infection. They treat him with many different anti biotic and anti fungal medications to cover all suspects. He looks much better today.
Please keep praying.
Pray for the temperature to stay normal and stablized.   And the new PICC line installation on Monday or Tuesday will be successful and in the right place.  Thank you.   

God Bless You,

Mark & Anita

Brian has fever again now.
Shivering, the temperature
spiked. Please pray with us now. Thanks.

God bless,

Mark & Anita

Early in the morning, Brian had a fever again.   After give him Tylenol the temperature came down a little bit.

Those 3 anti-biotic we're stop 2 days ago, they start to give him again through IV.
Please keep praying hard for no more fever. Thank you.

God bless you.

Mark & Anita

The fever was gone today.
Brian is doing ok now.
Thanks Julia prayed with us on the phone for 2 hours from 2:00 am. She is a super prayer warrior. She calmed not only me but also Mark and Brian.

Now, there is one more issue needs your urgent prayer. ---- One of Brian's PICC line was stuck. They used TPA to flush it but did not work yet.   Please pray that it will work this morning to avoid any further procedure.

God bless you.

Mark & Anita

　　“你吩咐以色列人往前走。”（出14章15節）
　　神的兒女啊，你當回想以色列人渡紅海時的那段凱旋光景！他們的婦女孩子怎樣因著看見自己忽然得了拯救——脫離了比死還可怕的命運——而驚訝；他們的男子怎樣因著想到自己以前屢次不肯信靠神，怨恨反叛摩西而羞愧。親愛的讀者，當你看見永生的神怎樣因著一人的信心，伸出他的手來將大水堆成牆垣，你就該知道神也會照樣會按著你的信心給你成就。
　　當你決意順服神的時候，不要擔心順服的結局怎樣，不要去怕那阻止你前進的狂風暴浪，因為“在洪水泛濫之時，耶和華坐著為王，直到永遠。”（詩29章10節）
　　風浪是神義袍的邊襟，再臨的徵候，同在的證據。
　　大著膽信靠他！大著膽隨從他！不久你就會發現：那攔阻你前進的 阻力，會因著神的命令，變成自由的進路。——梅爾(F.B.Meyer)

(Exodus 14:15) Tell the Israelites to move on.

God told Moses to raise his staff and stretch out his hand over the sea to divide the water so that the Israelites can to through the sea on dry ground. 

When you see God use one's "Faith" to stretch out his hand and make a wall of water, you will know God will fulfill it according to your " Faith".

(Psalm 29:10) The LORD sits enthroned over the flood: the LORD is enthroned as King forever.

Today is a regular day.    2 bags of blood A+ were givien to Brian last night.   He feels more energetic today.    No more jelly legs and hurting eyes.   Praise Lord!

Mom and Brian played air hocky in the teen lounge this afternoon.    Fun!

The hospital food menu are the same as always.    The only different is how you order it and create your own way, just as you see the show in food network chanel " iron chef".   Tonight we order meat loaf with grill onion, cheese, garlic bread and extra gravy.   It tastes like philiy cheese steak.  YUM.

Please keep praying for Brian with Joy and peace all the time.

God bless us all! 

Chemo's done today.

Brian had chest pain last night before he went to sleep.   Doctor gave him a Zantac and the chest pain was gone.   

No wonder they call it heart burn.   

There was a fever after the chemo was done.    Tylenol helped to drop the temperture down to normal.

Thanks God.  

We can hear the firework outside, but no energy to find a good view to watch it anyway.

It's the 1st time not seeing firwork on July 4th.     

Brian said it's kind of celebrating the finish of chemo.

Wish the best for "remission" ( leukemia free for bone marrow test few weeks later).

Let's pray--

Dear Lord God, You are Brian's stronghold, light and salvation.   Brian does not fear because YOU are with Brian; if YOU are with Brian, who can be against Brian?   YOU will strengthen Brian and help Brian and uphold Brian with YOUR righteous right hand.   Take away all of Brian's fears.  Brian trust in YOU.  Please send your warrior angels to protect Brian and Brian's family.   Replace Brian's fear with faith, hope, and love.   Fill Brian with your peace, YOUR presence and YOUR protection.  I pray this in Jesus' name.   Amen.

Good morning.

The chemo schedule will be every 12 hours for 2 days.   That means last night  is the first dose.   

The 2nd dose will be today from 10:30am. to 1:30pm.and.  Then 10:30pm. to 1:30am.  Till Wednesday morning 10:30am. To 1:30pm.    Then rest for 5 days to do next chemo for 2 days.    

We should all stay in hospital to observe and wait for count  to recover in around 1 month.    

Then another round of chemo.

Please keep praying that the chemo successfully destroy the leukemia completly.

May God's protection hold up high of Brian to tolerate the chemo.

Thank you.  

God bless us all.             

Mark & Anita

Dear families and friends,

Dr. Gaynon allowed Brian to attend a senior party with some his old friends last night.  

He had a good time.  Today and tomorrow are still easy days as usual.

The fight will start on Monday.   We'll get ready to fight again.   Please keep raising your hands  to pray for Brian.

Chemotherapy is the first month goal to kill the Leukemia cells.  Please pray for all the bad cell will be destroyed by the drug.

The remission will show the first round success.   Then Dr. Gaynon will give him 2nd round of chemo to completely clean it again.

This is the plan now.   Then they will decide how to do next plan.   There are some options-- bone marrow transplant or some other way of Donor Lymphocyte infusion........

May God grants our Dr. Gaynon the best wisdom for the regimen to cure the disease.   The nurses and medical team will have super nice and experiences to take care Brian.

Please pray the best result and the protection of Brian's body,the brain, skin, eyes, mouth, ear, heart, lung, liver, kidney, ........ ..

Let the drug kill only the bad cells, minimum the side effect, and prevent any infection.

Let's Pray--

" Thank you Lord,  You are Brian's Deliverer, Fortress, and Refuge.  Brian takes refuge in the shadow of Your wings.   Though enemies surround Brian, You will protect Brian and rescue Brian.   Brian wait patiently for You: You will bring Brian up from the desolate pit and set Brian's feet on a secure place to stand.  You will repay for Brian the years the locusts have eaten.  You will take away all the shame.  Brian will have plenty to eat and be satisfied.  You will put a new song in Brian's mouth and lift Brian out of despair.   Brian will sing hymns of praise to You,

Brian's Savior and Brian's God.   Fill Brian with Your faithful love, mercy, power, and truth.

Father in heaven,  I choose to believe Your Word and trust that You are working behind the scenes on Brian's behalf.  I give You all the praise and glory.  

In Jesus’ name.  Amen!

Transfusion appointment is 9:00am.

The blood drawing showed the platelet is 19K which is higher than 16K 2 days ago.

" No need to transfuse today.   You can have fun over the weekend.   Come back on Monday to start the chemo.",  said Dr. Gaynon.

Sherri, our case manager, arranged Sdonna to check Brian's arm and vein.     

" We will do the anesthesia for you before the pic line procedure.   Then you will check in with Admitting.

Somebody will call you tomorrow to make sure the time for Monday.  "

Dear Prayer Warriors,

We all expected for  the miracle and no need to repeat that treatment again.

But that's not God's plan.   His thought is higher than ours.

Many of us felt disappointed for the report showed that his platelet is lower than last Thursday.

That means the leukemia is attacking the platelet.

The treatment plan is to do the chemotherapy for 2 rounds.    Remission is the goal.

There are some options  for BMT.....

Even though we are frustrated,  but the Almighty God reminded us as 

你們必定和我們一樣期盼奇蹟現在就出現. 不必再重複那段療程. 

昨天和醫生開完會後. 眾人心情著實沉重. 我也不知如何下筆告知各位.

全能的上帝藉著祂的話 提醒我們

希伯來書10章35-39節

「所以，你們不可丟棄勇敢的心，存這樣的心必得大賞賜。你們必須忍耐，使你們行完了神的旨意，就可以得著所應許的。因為還有一點點時候，『那要來的就來，並不遲延。只是義人必因信得生；他若退後，我心裡就不喜歡他。』我們卻不是退後入沈淪的那等人，乃是有信心以至靈魂得救的人。」

為什麼不要丟棄勇敢的心？因為我們需要在神面前持續忍耐，等「行完了神的旨意」，才可得著神應許的恩典。當時教會之所以軟弱後退，是因看不見神的應許，在等候的過程中灰心喪膽。希伯來書作者在此勉勵他們忍耐，只有經歷這段過程，才能享受神旨意的完全。當然，過程中仇敵會來攻擊我們，但不要灰心，只要堅持勇敢的心。你在等候神的應許成就嗎？過程中你感覺灰心喪膽嗎？求神幫助我們，不是憑著眼見，乃是靠著信心，天天倚靠祂。耶穌基督是為我們的信心創始成終的神，祂必要成全在我們心中的渴望。

祂醫治Brian 必醫治到底.全然得勝!

感謝禱告奉耶穌得勝的名祈求，阿們！