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Dear families and friends,
  
Thank you for your prayer.  Brian's blood counts are good today.
Everything is toward recovery way...ANC 1490.  WBC 2.81m, RBC 3.53m,Platelet 52K.   Halelueh!
Tomorrow morning (9/13) will have the Bonemarrow aspirated biopsy and LP
There must be 0 Leukemia.  And  all the procedure will be  smooth and sucessful.
Please keep praying hard for
1. The "Bone marrow aspirated biopsy" and LP will be successful and  0 leukemia.
2. May God give Dr. Gaynon and the Bonemarrow team the wisdom and they will have the best plan for Brian.
3. Pray for all the procedures will successfuly and give Brian 100% recovery to be  a healthy and happy boy.
4. Pray for Brian and Vivian to prepare their heart and body for the transplant.  May God's proctetion and
    anoiting more on both of them. 
  
Thank you and God bless us all,
  
Mark, Anita, Brian & Vivian
 
 
 感謝各位的禱告.  
今天醫生Brian的指數已愈來愈朝正常的方向發展.
明天週二做骨髓穿刺檢測骨髓內的細胞確認是否0癌細胞.
之後主治Dr. Gaynon 將和骨髓移植的醫療團隊 商討下一步治療計劃-- 再化療或直接移植程序.
 
請繼續迫切禱告.
1. 為明日9/13 檢查順利且全無癌細胞.
2. 並求主給Dr. Gaynon 智慧.相信 主一定會給所有醫生最佳的智慧判斷,在最好的時機進行全備完
   善的醫治.
3. 一切檢查治療順利成功.Brian回復活潑健康快樂.
4. 求主預備並保護Brian Vivian 身心靈. 在整個移植過程並一生為聖靈保守看顧.
 
願神大大賜福予你. 阿們!
 
Mark, Anita, Brian & Vivian



堅持信靠的Brian 發表在 痞客邦 留言(0) 人氣()

Dear friends and families,

Praise the Lord. It was the happiest day and the most meaningful Easter Sunday for us. What a Resurrection day! Thanks VOH (our church Vineyard of Harvest Church) for the warm welcome. You made Brian feel so loved.
 
It was so nice to come back to Church home and real home even only stay for few hours. You must think Brian should be very tired for standing in church to talk to friends in stead of sitting on the wheelchair, right? He was too excited to be tired. He couldn't wait to touch and play his Double bass, piano and violin as soon as we got home after leaving church. "It feel so good to be home after 4 months away from it.", Brian said. Friends, aunties and uncles came over to see this miracle boy coming home. Cheering and tears are on some of them......
 
That night, we arrived hospital by 8:00pm. They said, " You won't get a weekend pass again if you didn't come back hospital on time. For the pass is good for 12 hours from 8 to 8..................."
 
Guess what? Brian walked and did many things much faster and stronger after Easter Sunday.
On Monday, OT said, " we are going to have outing this week. We'll buy the ingredients for your fried rice."
And we went to near by supermarket- VON'S to buy all the stuffs yesterday.
The rehab attending Dr. Craig said," we will discharge you on this Friday."
Wow! We can go home....... How excited! We don't even need for another weekend pass though. Yay!!!!
So, there are only 2 more days if you would like to visit us.
We will leave CHLA before noon. ( The discharge time is 11:00am.)
 
Thank you for your prayer all the time.
Your continued support is very important to us.
Please keep praying for Brian's eyes ( right eyes is much better, left eye need to see more). Pray for whole body 100% recovery.
『禱告透切,是禱告到完全的信心裡去,禱告到還在禱告的時侯,就已經有一種把握,覺得我們的禱告已蒙垂聽、已蒙悅納了,禱告在事情還沒有實現之先,覺得已經得著了所求的。』

馬太9:29

耶穌就摸他們的眼睛,說,照著你們的信給你們成全了罷。

Matthew9:29
[BBE] Then he put his hand on their eyes, saying, As your faith is, let it be done to you.
[KJV] Then touched he their eyes, saying, According to your faith be it unto you.

『世上任何環境,都不能攔阻神的話應驗,所以讓我們堅信祂的話,沒有改變的可能,雖然世界一直在改變,神要我們單信祂的話,
不用證實或憑據,然後祂要照著我們的信給我們成全了。』


創世紀 1:9『神說:事就要成了 ! 事就這樣成了!
Genesis1:9
[KJV] And God said, it was so.
Let's keep praying and glorify His name together.
 
May God bless you and reward you more abundantly.
 
We love you all.
 
Mark & Anita

堅持信靠的Brian 發表在 痞客邦 留言(0) 人氣()

Hi Dear all,
 
Doctor said the normal person's ANC is 1000 and up.
"Brian can move to rehab as soon as Brian's ANC is 200 and up.", said Dr. Cecelia Fu last Friday.
 
We've moved to 6th floor Rehab center on Monday (4-18-2011).  
That day his ANC is 250. We felt everything is under God's plan.
And we experience God every day and any moment.
 
We still recall that God's hand is there when we almost touch the obstacle.
For the moving up to 6th floor on Monday night. The charge nurse accidentally arrange us in a dangerous room with a cough kid. Thanks Lord. Before we moved to that room, Mark asked me to go up to check it out and clean ( spiritually and physically) that assigned room. As soon as I clean the cubby and the Holy Spirit told me to talk to the mom of the new roommate. The mom was so nice and understand after we exchanged our son's symptoms. She told me and the nurse that his son is coughing because his former roommate was coughing a lot. She thought my son's immune system should be low now and should not share the same room with him. So the charge nurse quickly switch and rearrange other room for us. Praise the Lord! He saved us and let us know He is there through this incident.
 
We are in rehab for 5 days. Brian's ANC was 870 on Thursday. Doctor said his ANC should be safe now.
They didn't draw his blood today. The next draw will be next Monday or Tuesday.
Guess what? God open the door for Easter Sunday.
 
3 days ago, we asked Dr. Craig ( the rehab attending) when we can get a weekend pass.
He said " Not this weekend, his blood count still low. Maybe next week."
But today we asked our oncology Dr. Zomodian ( she is one of my favorite Christian doctors), she allowed Brian to have a weekend pass to go to church. She called Dr. Craig (without my asking) to release the pass. And he agreed if the PT & OT can bring Brian to train him to get in and out of the car...............
So 4 of us ( Vivian stayed with us in Ronald McDonald house every weekend since 4-3-2011) will leave from hospital tomorrow morning and show up in our church VOH to celebrate Easter.
 
Praise the Lord! Brian will see our dear family brothers & sisters after staying in the hospital for 4 months.
We will edit a clip and show our appreciation to the congregation.
God brought Brian from the threaten of losing life to potential of paralyzing to the stage of now ( this is what our oncology Dr. Zomodian said today while we discussed Brian's past and future education trip. She encouragd him with clear and bright future and how to cherish life ).
 
Thank God. Through gradually recovery, Every body ( including nurses and doctors) said, " It's a miracle". " He is a miracle".
From ICU stop sedation ( because doctors can not know how his brain function, they worried about he might not wake up. We still remember ICU attending told Mark with very sad mood, "I am so sorry. I'm very sorry."), until he started to breath on his own, moving hand and feet a little bit to a lot, call mama, baba, Vivian....... to he can said "nose, ear, eye and eyebrow".
From question president to lady Gaga.
From sit up with folding bed-chair and taping eyelid to help open his eyes, to sit by himself and totally eyes open. From hard to squeeze playdoo and twist the Rubik cube, to now finish 3x3x3 in 2 minutes 30second ( he used to finish in 23 second)''.
From feeding liquid formula through nose to chewing ice-cube to eating hamburg.
From losing weight to 70 kg to gain 14 kg now with super good appetite.............
 
It all happened in this 4 months.
Now Brain can talk and think as usual. Play the Rubik cube 3x3x3 and also 5x5x5 like before. He even can play a little bit "Super Mario (with blind folded" as he used to be) on the keyboard that we brought from home . The only 2 instruments we didn't know are his violin an Double bass. We will let him try it once we get home tomorrow afternoon for few hour, the pass only last 12 hours from 8am to 8pm.
The reason we are in rehab is to train him walk balancedly since his both feet are not strong enough ( both hands are much stronger than before, but they are hard to write appropriately as usual).
 
Through God's leading, we also had a very good conversation with our oncology Dr. Zomodian this afternoon. She is one of the doctors who recommend us to do BMT. But she said, " There is no right or wrong choice to do or not to do BMT. It do have 10 to 20% chance to get GVHD after BMT. We won't let you choose if we feel he must do it now. You are fine to make the better decision whatever you feel more comfortable and the best for your own kid. Some kids are doing fine with Chemo only too."
 
Yes. Amen. God has cured Brian with cancer free since 1st Chemo.
We proclaim Brian's body is healthy and free of cancer forever.
We declare that God will satisfy Brian with long life as He promised in 詩篇 (Psalms 91)
91:1 住在至高者隱密處的,必住在全能者的蔭下。
[KJV] He that dwelleth in the secret place of the most High shall abide under the shadow of the Almighty.
91:2 我要論到耶和華說,他是我的避難所,是我的山寨,是我的 神,是我所倚靠的。
[KJV] I will say of the LORD, He is my refuge and my fortress: my God; in him will I trust.
91:3 他必救你脫離捕鳥人的網羅,和毒害的瘟疫。
[KJV] Surely he shall deliver thee from the snare of the fowler, and from the noisome pestilence.
91:4 他必用自己的翎毛遮蔽你,你要投靠在他的翅膀底下,他的誠實,是大小的盾牌。
[KJV] He shall cover thee with his feathers, and under his wings shalt thou trust: his truth shall be thy shield and buckler.
91:5 你必不怕黑夜的驚駭,或是白日飛的箭,
[KJV] Thou shalt not be afraid for the terror by night; nor for the arrow that flieth by day;
91:6 也不怕黑夜行的瘟疫,或是午間滅人的毒病。
[KJV] Nor for the pestilence that walketh in darkness; nor for the destruction that wasteth at noonday.
91:7 雖有千人仆倒在你旁邊,萬人仆倒在你右邊,這災卻不得臨近你。
[KJV] A thousand shall fall at thy side, and ten thousand at thy right hand; but it shall not come nigh thee.
91:8 你惟親眼觀看,見惡人遭報。
[KJV] Only with thine eyes shalt thou behold and see the reward of the wicked.
91:9 耶和華是我的避難所,你已將至高者當你的居所,
[KJV] Because thou hast made the LORD, which is my refuge, even the most High, thy habitation;
91:10 禍患必不臨到你,災害也不挨近你的帳棚。
[KJV] There shall no evil befall thee, neither shall any plague come nigh thy dwelling.
91:11 因他要為你吩咐他的使者,在你行的一切道路上保護你。
[KJV] For he shall give his angels charge over thee, to keep thee in all thy ways.
91:12 他們要用手托著你,免得你的腳碰在石頭上。
[KJV] They shall bear thee up in their hands, lest thou dash thy foot against a stone.
91:13 你要踹在獅子和虺蛇的身上,踐踏少壯獅子和大蛇。
[KJV] Thou shalt tread upon the lion and adder: the young lion and the dragon shalt thou trample under feet.
   
91:14  神說,因為他專心愛我,我就要搭救他,因為他知道我的名,我要把他安置在高處。
[KJV] Because he hath set his love upon me, therefore will I deliver him: I will set him on high, because he hath known my name.
91:15 他若求告我,我就應允他,他在急難中,我要與他同在,我要搭救他,使他尊貴。
[KJV] He shall call upon me, and I will answer him: I will be with him in trouble; I will deliver him, and honour him.
91:16 我要使他足享長壽,將我的救恩顯明給他。
[KJV]
With long life will I satisfy him, and show him my salvation.
Please keep praying for us. Brian's eyes and body strength are gradually improving. Keep praying for the 100% recovery. Pray the left eye can see more soon ( now he can see the object when we wave something in front of the left eye. The right eye can see 40, it's closer to his original 20).
 
Well, hope we can see you tomorrow in VOH or in the near future.
( You are welcome to visit us and entertain Brian with your talent if you are free of any symptom of fever, sneezing and coughing. Mrs. Wilson and Mrs. Strand & Mrs. La Certe and our dear neighbors and friends, brothers and sisters. Sorry for kept you waiting. Brian miss you all. Call us to let us know before you come.)
 
May God bless us all more abundantly.
 
Love you all,
 
Mark and Anita
 

堅持信靠的Brian 發表在 痞客邦 留言(0) 人氣()

Dear brothers and sisters,  
 

After many days of prayers, the bone marrow transplant (BMT) have not been able to bring us peace of mind. So we did not do the bone marrow transplant. The doctor said the chemotherapy treatment has been completed and he was very satisfied with the progress of Brian.

We are currently waiting for his blood count to return to normal, and after the completion of the rehabilitation program, we can go back to living a normal life like before.

Hallelujah, Praise the Lord! We might move to rehab on Monday if his ANC go up to 200 &up.

You are welcome to visit him in Rehab. We will let you know when.  

God is in control of our lives. He sends spiritual authority -- the church, Pastors, zone and cell leaders, So many brothers & sisters, friends & families from all over the world to pray for Brian and support us along the way to lead with us so peacefully through every storm.

 

Regarding BMT, we are always seeking God's Devine Appointments to help us to make the wisest decision. Recently, there are many different proposals and sound. Please do not be discouraged if your current direction of prayer is different to our decision. We strongly believe no matter what we choose to do or not to do Bone marrow transplantation, God has taken the full responsibility of the healing for Brian. Amen!  

We don't know why? All along, we are concerned the complication especially in case of graft failure is caused by the exclusion of the most serious consequences of .........  

1. On 4-5-2011, we had a meeting with bone marrow transplant physician. At the beginning, we asked to record the meeting. The coordinate RN said OK. All the other doctors agree to be recorded. But this doctor refuse to let us record. ( It's not common. And we feel it's strange though.) The meeting took around 3 hours. When almost at the end, the doctor mentioned "GVHD( graft verses host disease)" and the opportunity for fatal rejection is very small. This is what we are concerned the most. Doctor said because the donor is silbling, so this will rarely happen. But, you know what? God sent our friend Vicky, Dr. Helen Huang and Pastor Kwan to attend our meeting. Vicky had a friend who got this fatal rejection 5 years ago after 3 months of BMT. He had lukemia, AML-M4, and his donor is his younger sister. What a coincidence! We believe this is the 1st Divine Appointment that God sent to block our BMT. 

2. Another Devine Appointment --- 3 weeks ago, our brother Daniel give us a phone number of another brother whose kid was suffered the the same type of leukemia as Brian. Now that boy is healthy and strong after chemotherapy ( 11 years ago when he was 4 years old). He didn't do bone marrow transplant. Actually, we knew him long ago right before he suffered this disease. He used to be a classmate in Brian's pre-school DBC. Our God has prepared long ago to let us know each other. The parents visited us 2 days ago and brought us bright hope. 

3. On 4-3-2011 in VOH( our church), we have a meeting with our 9 core prayers who had been prayed for our BMT for a long time. During the meeting, we strongly believed that God has healed Brian and will take the full responsibility for Brian's health. The most impressive in this meeting is

- - God on purposedly made our primary Dr. Gaynon to mix up our diagnose. So during the second and third chemotherapy, he misled us to picture that we can go home after all 4 chemotherapy (no need BMT, he said.) That's why we are hard to accept BMT and have more time to reconsider it.

We believe whatever we choose to do and not to do bone marrow transplant, Brian's life is in the hand of God. God is the greatest doctor. He will be responsible for the healing.

 

Through these considerations and confirmation, we believe God has healed Brian. We should not put him into another long months or even longer risk without guarantee. It is time to focus on physical therapy and rehabilitation and to return to normal life. God equipped us during this trial.

We shall come out to do the testimony and glorify his name.  

Please continue to pray for Brian. Both of his eyes need to be back to 20/20. The whole body strength. Your mighty prayer will support us and bless the health of Brian. Please also pray for our whole family's life adjustment. Your prayer will make our lif easier.

 Pray for peace and joy in you and us. May God bless you more abundantly. 

 

Thank you once again, with the grace of you along the road, especially cozy.

Invite you to stand with us on the Word of God, pray and read aloud:

(Psalms)
23:1 The LORD is my shepherd; I shall not want.
23:2 He maketh me to lie down in green pastures: he leadeth me beside the still waters.
23:3 He restoreth my soul: he leadeth me in the paths of righteousness for his name's sake.
23:4 Yea, though I walk through the valley of the shadow of death, I will fear no evil: for thou art with me; thy rod and thy staff they comfort me.
23:5 Thou preparest a table before me in the presence of mine enemies: thou anointest my head with oil; my cup runneth over.
23:6 Surely goodness and mercy shall follow me all the days of my life: and I will dwell in the house of the LORD for ever.
God! You're Brian's Good Shepherd, Brian thank you supply all he needs, so he does not want.

God! Brian is lying to you personally in the green grass with you personally cares Brian, feeding Brian, so his body grow stronger and stronger.

God! I praise You, you brought to your living water next to Brian, so Brian drink the living water of your life, you have given rest the soul of Brian, so he was not afraid.

Lord ! Brian Thank you for the life of the living water to drink more, so he had the strength inside again.

Lord ! Thank you, You have filled him with your peace. The Holy Spirit, please continue to touch Brian, let Brian know that you have been led in front.

Lord ! I praise You, Brian's body grow stronger and stronger, his soul has toward you wake up, attracted by your name.

You are Jehovah Jireh, you will supply to Brian,

You are Jehovah Rafah, , you heal Brian,

You are the Lord Roy, you are looked after Brian,

Law Lord to lead you, Brian is with thee created, and only you can fully recover his health,

You are Jehovah Nissi, you are the only victorious banner of the hands of Brian

Lord ! We believe that you are using your name to guide Brian, promised Brian,

Thus, while Brian was walking on the plight of death threats, he will fear no evil, because the big energy with you and Brian in your words, your command, your promises are comfort to Brian.

Lord ! So we are going to praise you, you not only better than all the tricks of the enemy attack, and you have a feast before the enemy, declaring victory. Lord ! We have to accept your invitation, sitting among Thy feast, to celebrate with you has come to welcome Brian's health.

Lord! Thank you for your anointed Brian, chose him to accept your shape, to become a precious vessel.

Lord! Thank you for the promise of the grace for Brian's whole life. We declare Brian should always be in your house to serve you, love you, considerate you, honor you.

 

In the name of Jesus Christ, God's own words much success in front of us, Amen!

 

 

If you have not received update for a long time, please link to Brian's blog

http://gripoffaith.pixnet.net/blog (We will continuely update new and some old missing fun stuffs once we have time to do it.)


God bless you,

 

Mark & Anita

堅持信靠的Brian 發表在 痞客邦 留言(0) 人氣()

 

 親愛的弟兄姊妹,

經過多日來的尋求與禱告, 骨髓移植計畫一直無法帶給我們平安的意念. 所以我們不做骨髓移植。

醫生說整個化療療程已完成,目前等待他的指數回歸正常即可出院,回復正常生活.

哈利路亞,讚美主!

掌管生命的主,差派屬靈權柄教會、牧者、區長、組長、弟兄姐妹為Brian的健康來禱告與扶持,一路走來引領陪伴我們平靜安穩的渡過每一個難關。

近日來有很多不同的建議與聲音,我們一直在尋求何者是真正神的差派(Devine Appointment).  若您目前的禱告方向與我們有所出入,請勿氣餒. 相信不管我們選擇做與不做骨髓移植,神都會負責醫治Brian到底。

一直以來,我們所擔憂的是萬一移植失敗所導致最嚴重的排斥後果.........

在4-5-2011與骨髓移植醫師的會議中,醫生提到因排斥而致命的機會非常小,但我們來參與會議的三個朋友之中的Vicky,她的朋友卻在幾年前碰到了而回天家 (而他恰巧也是 AML-M4,由他的妹妹捐贈骨髓 ),這是我們所領受的其中一個神的差派,來攔阻這個決定。

另一個Devine Appointment,是神在11年前就預備了讓我們認識Brian的 pre-school 同學,他在4歲多曾患與我們同一型的白血病,經過化療後,沒有骨髓移植,一直都活得健康又健壯。

在 4-3-2011 我們在所屬教會 VOH 有一群核心禱告團隊經多日的個別禱告後,開了一個Meeting. 在這個會議中, 最令我們印象深刻的是在禱告中所感動的 -- -- 神特別在第二次、第三次化療中,讓我們的主治醫師搞錯了,故意誤導我們不用換骨髓而且四次化療後就可回家的畫面,因此才延後了做不做骨髓移植的程序,以致我們有思考的機會。相信不管我們選擇做與不做骨髓移植,神都會負責醫治Brian到底。這是神所給最大的應許.

經由這些考量與印證,讓我們更堅信神已經醫治了Brian,不應該再去投入另外一個長達二個月甚或更長且無保證的風險中,現在該是專注於物理復健治療及為回歸正常作息做預備,神在這段時間裝備了我們,該是出來為祂作見證的時侯了。

請繼續用你們大能的禱告扶持我們,讓Brian在這條健康的路上為主做榮耀的見證!也為我們全家調整回到正常作息來祝福。這當中有很多的不容易,但在神沒有難成的事,有了你們的禱告,我們會做得更輕省, 步伐更穩健。

祈求平安喜樂更多加添在你我當中,願神更多賜福於你們。

  

再次謝謝你們,恩典的道路有你同走,特別溫馨。

邀請你,與我們一起站在神的話語上,大聲禱讀:

23:1 (大衛的詩。)耶和華是我的牧者,我必不至缺乏。

23:2 他使我躺臥在青草地上,領我在可安歇的水邊。

23:3 他使我的靈魂甦醒,為自己的名引導我走義路。

23:4 我雖然行過死蔭的幽谷,也不怕遭害,因為你與我同在;你的杖,你的竿,都安慰我。

23:5 在我敵人面前,你為我擺設筵席;你用油膏了我的頭,使我的福杯滿溢。

23:6 我一生一世必有恩惠慈愛隨著我;我且要住在耶和華的殿中,直到永遠。

神啊!你是Brian的好牧人,謝謝你供應Brian一切的需要,使他不至缺乏.

神啊!是你親自讓Brian躺臥在有祢同在的青草地上,你親自看顧著Brian ,餵養Brian,使他的身體越來越強壯.

神啊!我讚美祢,你領Brian到你的活水旁邊,讓Brian飲用你生命的活水,你已賜Brian安歇的靈魂,使他沒有懼怕.

主啊!謝謝你餵Brian喝更多生命的活水,讓他裡面重新得著氣力。

主啊!謝謝祢一直用你的平安充滿他.  聖靈,請你繼續觸摸Brian,讓Brian知道你一直在前面領著。

主啊!我讚美祢,Brian 的身體越來越強壯,他的靈魂也已向著你甦醒過來,被你的名字吸引。

你叫耶和華以勒,你必供應Brian

你叫耶和華拉法,你必醫治Brian

你是耶和華羅伊,你正在看顧Brian

你是耶和華以羅引,Brian是祢創造的,只有你能使他完全恢復健康,

你是耶和華尼西,你是Brian 手中唯一得勝的旌旗

主啊!我們相信你正用自己每一個名字來引導Brian,應許Brian

因此,雖然Brian 曾經走在有死亡威脅的困境中,他也不怕遭害,因為大能的你與Brian 同在,你的話語,你的命令,你的應許,都是Brian 的安慰。

主啊!所以我們要來讚美祢,你不僅勝過仇敵的一切詭計攻擊,而且你已經在仇敵面前擺設筵席,宣告得勝.   主啊!我們要接受你的邀請,坐在祢的筵席當中,與你一起慶祝迎接Brian 已經到來的健康。

謝謝你膏抹Brian,揀選他接受你的塑造,成為你寶貴的器皿,來承載滿溢的恩福。

謝謝你應許給Brian 一生一世的恩惠慈愛相隨,我們宣告Brian要永遠在祢的家中服事你,愛祢,體貼你,榮耀你。

奉基督耶穌的名,願主自己的話大大成就在我們眼前,阿們! 

  

 若您已許久未收到update, 還有更多訊息欲與你分享, please link to 堅持信靠的Brian部落格 

http://gripoffaith.pixnet.net/blog

 

Mark & Anita

 

 

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It's a new rule.  Everybody come to our room needs to exchange a joke or listen to Brian's joke.

Our primary Dr. Gaynon has lots of jokes too.  It's amusement time for both of them.   So impressive.

 A blond said, " I know all the capitals of 50 states."  " OK.  What is the capital of Nebraska?"

The blond said," N"..........

 

Thank you ucle Clement & auntie Evangeline came to visit us and encourage us with their own experience in this hospital

11 years ago.    You brought us clearer vision with God's plan.   God did plan us to know each other in 11 years ago in that DBC preschool.

Classmate, 4years old, same Lukemia AML.........  What a coincidence!  Knowing your son in Highschool now, healthy and strong.

It encourages us a lot.  Praise the Lord. 

 

Laruen our Occupational Therapist will finish her intership in this hospital today.

For celebrating her last day in CHLA, we had a Icecream party this afternoon.

fuThey are really professional.  They combine the therapy with fun stuff to not let you feel bored.

Brian needed to bend his knees to scoop the icream which are laying on the ground.  Then he brought the icecream from ground to the cup which is on the table.

The topping had rainbow sprinkle, caramel syrup, cheesecake frosting.  Mom and Kim got the "work" which with all the topping. and the nurses got different toppings.

Brian scooped all the icecream and poured all the topping we ordered and serve for 8 of us.  actually 9 including himself.

When Lauren open the thank you note that Brian wrote to her, she was so touched and she cried.SAM_4281.JPG  

It is so warm to be loved and to be appreciated...................  We'll miss you Lauren...........

 

Amy (the speech therapist) came late after they left.   " Darn, I miss the icecream party." 

"It's Ok.  I'll play the music on my electric keyboard to entertain you", Brian said.

"Wow!  super Mario, Debussy.  Looks like your strength coming back a lot", said Amy.

David, the nurse assistant,  mixed up the Rubik's cube........." Wow! Brian, You finish it in 2 minutes and 25 seconds."

"I used to finish in 26 seconds before.", said Brian.   " It will come back soon.  Do you remember you can't even turn the cube 2 months ago?"

" Ya, you're right."

 

It's walking time after dinner.  " Wow! Here comes the Miracle....", the secretary of nurse station said. 

"Yes, he is a miracle........."  " You are looking good, Brian."  " Thank you......."  Thanks God.  Praise the Lord!

It's time to sleep.  Pray for Lauren to have a good new job, Brian's roomate Rudy has successful chemotherapy with no side effect, Brian's eyes with fully recover back to 20/20.

Pray for friends, brothers and sisters in VOH, BSF, CYMO,UTD,Taiwan,China and other countries,etc......... with blessings and love...........

We will move to  6th floor for rehabitation once Brian's count is up.   You are welcome to visit after we move.   When?  We will let you know later.

Please keep praying for Brian's fully recovery.   Your prayers are very important to us. 

 Let's glorify his name together.  Praise the Lord!!

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親愛的弟兄姊妹:
 
今天( 12 月22日)下午,和幾位醫生會診之後,目前治療方針如下:
 
1. Brian 腦部多處出血的狀況,已經開始緩和下來,但仍然未完全停止。這是目前醫生全力對付的重點。今後三天會是關鍵,他仍在險境中。
2. 針對急性血癌所作的化療仍在進行中,白血球必須降到4,300 to 10,800 之間。
 
感恩事項:
 
1. 感謝神,原來發炎腫脹使Brian呼吸困難的氣管咽喉已經非常明顯消下來。
2. 原先急速上升的白血球數目已經從425,000下降到90,000
 
代禱事項:
 
1. 腦部儘快完全停止出血
2. 不要因出血而造成腦部傷害 (醫生提過這種腦出血和中風差不多,目前無法知道影響多大)
3. 整個化療過程對腎,肝和肺的負擔和影響很大,求神保守他這些器官能夠免於傷害。
4. Mark 和Anita這幾天身心俱疲,請先禱告他們能夠有些優質睡眠,不陷入自我控訴的情緒中,並能夠專心,單純地仰賴主,不受負面思想攪擾。
5. Mark能夠清楚被聖靈觸摸,信心得堅立
6. Vivian從今晚起在Sabrina家住,25日起會到朱朱家。求主保守她的心思意念,不害怕,並與父母同心為哥哥禱告。
 
注意事項:
 
1. 詢問醫生後,在加護病房的Brian目前暫時不適合接受探訪。
2. Anita 希望可以有人去陪他們,弟兄那邊牧師在安排(若有弟兄願意負責聯絡安排更好),姊妹這邊,睿欣決定不去北加參加特會,如有姊妹願意輪流到醫院去陪Anita,請先和睿欣聯絡一下。

3. 由於他們兩人決定這幾天要住在醫院提供的家長休息室,Brian無法進食,所以請大家暫時不要帶一鍋一鍋的食物去。若去探望Mark/Anita, 簡單的水果(麻煩請削好),或是點心簡食比較好。
 
Mark/Anita 在主裡謝謝你們有聲無聲的關懷和代禱,神的榮耀正在當中進行,讓我們擁著這個家庭,一路跟隨。
 
仁生,睿欣
 
ps 請帶傳此信給你的小組組員,謝謝  
 

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A raining day.    

It's been2 weeks already since the first symptom (sore throat with fever ) happened.   Our family doctor Dr. David Lee had treated Brian with oral antibiotic (Azithromycin 250mg) for 5 days.   The symptom still exited.   Then he gave him 2 shots ( Ceftriaxone 500mg & Dexamethasone ).   He said " go home have a good rest and you will be fine tomorrow.   It didn't help to reduce the symptom but even getting worse.

The 4th clinic visit.  Fever still.   There are bruises on his toung and neck.   He said," It's allergic to pennicilline."    Then he gave Brian another shot (Epinephrine 1:1000).   It's ok, go home take some benezyle and rest.   5th visit- the vision blurry, the bruises all over his neck, he couldn't breath during the night, fever and sweat a lot.    Finally he said " go to emergency room".  "which one?"  " Any one?  Just go......, hurry!"

Not knowing how serious it was.    1:25pm.  Called our church sister Dr. Helen.   She helped to arrange and talk to the doctors in Whittier hospital.  

CT scan, blood drawing, IV fluid,..........   A long long wait, don't know how lolng the time passed.   Only one parent allowed inside the room with patient.    From 2 o'oclock to sunset.   Mark felt uneasy and texted to all the name list on his phone.  " Pray for Brian...."

Pastor Kwan, Mrs. Kwan, Pastor Dennis, Paul, Joseph, Huiling,.........

250K white cell counts, Low patassian, low platelate........   It could be Leukemia........   " We'll call Children Hospital to arrange the room and transportation....."

Midnight.     Friends came after the concert --Dr. Han, Paulin, Samuel.  The first physician we met, Resident Dr. Sophia.  "we gave him platelets and will check LP tomorrow morning.    No food and water before the test..............

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