堅持信靠的Brian's Blog

Thanks for your prayer.    Dr. Hisham said, " It looks like not bad thing recurring.   It possibly caused by some Virus.   We will draw some blood test.

And to clear out the chance of relapse, you need to have a bone marrow aspiration and lumbar puncher tomorrow morning.    Don't be stressful now.

I don't think it's bad thing happen.............."

Please keep praying for Brian.   The procedure is scheduled at 10:30am.tomorrow.   We need to arrive CHLA by 7:30am. to do some preparation for that bone marrow test.      Pray for the smooth and successful procedure.  Pray for the result will be favorable.    

Lord, we cry out one accord to your 100% healing power in Brian.    Leukemia totally free from Brian's body.

We glorify your name with Victory forever ...............

( Psalm 50:15) " Call upon me in the day of trouble; I will deliever you, and you will honor me."

( Psalm 56:9-11) " Then my enemies will turn back when I call for help.  By this I will know that God is for me.

                           In God, whose word I praise, in the Lord, whose word I praise--   

 in God I trust: I will not be afraid. "

( Jeremiah 33:3)  Call to me and I will answer you and tell you great and unsearchable things you do not know.

CHLA BMT nurse Kathy called and faxed the report.

"The platelet is too low.    white cells are low too.   The doctors are concerned..   It might be caused by Virus or possibly relapse.

Please come tomorrow by 9:30am. to check again.   And you might need to sign a consent for bone marrow test for the following day. "

Urgent prayer request was sent out through VOH staff.  Thanks for praying.

Our faith never changed.     Be strong and courageous.

(Psalm 34:4-5) I sought the LORD, and he answered me; he delievered me from all my fears.  Those who look to him are radiant; their faces are never covered with shame.

Today we has a regular monthly follow-up clinic visit.   

Everything is OK.    Blood count report hasn't done before we left.

Will call and fax.

Today is Day 170.   A relax Day in downtown LA.

Thanks Melinda for inviting us to attend CYMO's performance in Disney Concert Hall for Youth Orchestra Festival.

It's Brian's 1st family outing except church Sunday service.   We all had a good time.

Pictures, pictures with Melinda, Metthew,Auntie Jennifer, Uncle Pactrick, Bathany, Nathan, Pastor Lai, Christina, Byron, Jordan, and Jessica.......

Today is Cinco De Mayo.    No wonder Downtown LA was so crowded even in Little Tokyo.

Not a long day.   But we need to rest early for attending Pastor Wang Kang's VOH Arcadia anniversity celebration tomorrow morning. 

Are you ready for tomorrow's Sunday service at church?    Don't miss it.   It's a blessing.

God bless you!

Today is Day 168.

It's been just 2 weeks or more after doctor allowed Brian to join public activies.   And the activities are from one step to another higher technic leap.

Church Sunday service with mask on, and no mask next week.

Attending school Robotic class,  and blending with friends in and after school.

Shopping in the crowd at Brea mall, and attending High School Senior Prom.

All the sudden, every single activities are full of fun and excitment.

Thanks Pastor Lai offered free Bass lessons for Brian as a gift to help him to pick up his strength in playing the instrument.

Mt. Sac Community College offered special accomadation for him to do the placement test.    The date will be next Thursday.

The Summer schedule is long and tight.    We don't know it will work well for him or not.

Let pray for everything in under God's contorl and His best plan for Brian.

In Jesus' name, Amen!

Day 165.      A little cloudy day.

Everyday Brian met many friends after 2pm. by the tree in front of school entrance.

Today he stayed longer for I spoke to Stacy regarding his Mt. Sac registration.

At the time we were going to leave, the 3pm. bell rang...........

Huey brought Brian to check it out where the orchestra room is .   We met Nick by the door of the music classrom.

Mr. Acciani was glad to see Brian and told him come to the 4th period Symphony class.    I said, "He didn't play Bass for a long time."

" He will pick it up really quick, right?    Here is the music (14 pages).   We will record it in few weeks. ", Mr. Acciani said.

" OK.   I'll try.", Brian answer..........

I called CHLA and talked to his case manager nurse Kathy after we got home.   She said, " He can add a class.    Play double bass in Orchestra is fine.    But remember he needs to eat lunch ( without raw food, raw vegi) under cover.    Don't expose under sun light."    

Well, we'll figure it out how to let him attend this class. We'll see........... 

 Day 163.    A big day-  DBHS Senior Prom night.

Brian and Vivian had watched a lot of TV shows or movies which talked about Prom.

It looks like there are many traditions to catch on.   But Brian's main purpose is to talk to old friends.

Not every single seniors came.   Only half of it showed up.

It's like a reunion to Brian.   Pictures, pictures with friends from Elementary to Middle school.   They were all so nice and glad to see him doing well.

Friendship forever.......

Thanks DBHS vice principle for offering we parents to chaperon Brian in the Prom.     It made all 3 of us feel secured and enjoyed the Prom night.

I still remembered what Dr. Chris said in clinic visit at 3 weeks ago.  He said, "There is no magic number what date he can do this or that activities.   Every kids are different.   I think Prom is important for Brian and it's ok for him to go.   We'll give him IVIG at the week of his prom day.   But remember there are risks involve.   You parents make your own decision."    Wow!    It's hard for Mark to let go.    He is rather be strict and not to risk any chance.    Until 10 days before prom, he realized something through his morning devotion with Brian.   God spoke to him through the scripture.    Daady agreed Brian to attend the Prom.    All the sudden the preparation is a hassle.   But everything is a good experience.    Every single thing happen with His purpose for our own good.    We can really enjoy everything if we "let go" and "let God".

It's an Honor to take so many pictures with Prom King and Prom Queen.   And even Brian, Mark, and I had the chance to take pictures with that sash on.   All of  that won't happen without God sending so many angels surrounding us.  Mr. Terry, Mrs. Real, Mrs. Auten, Dora, and all of Brian's friends.........   You all made our day.     An unforgettable Prom night.

Thank you very much.

God bless us all.

Today is day 160.

Let's pray for the clinic visit w/ IVIG.

Pray for safe trip and smooth processing.

Pray for the people we will meet today.

In Jesus's name, Amen!

(Psalms 29:1-2 &11)

1 Give to the Lord, you sons of the gods, give to the Lord glory and strength.

2 Give to the Lord the full glory of his name; give him worship in holy robes.

11 The Lord will give strength to his people; the Lord will give his people the blessing of peace.

(詩篇 29:1-2 &11)

1 神的眾子啊，你們要將榮耀、能力歸給耶和華，歸給耶和華！

2 要將耶和華的名所當得的榮耀歸給他，以聖潔的（的：或譯為）妝飾敬拜耶和華。

11 耶和華必賜力量給他的百姓；耶和華必賜平安的福給他的百姓。

Today is Day 159.    3rd day of school.   

Brian is more getting used to it.   Meet old friends in front of school entrance.    

As a mom, I am so excetied to talk with his friends too even though the girl Grace didn't recognize me.  

I still remember how the kids greeted me sweetly and called me Mrs. Liu when they were in Elementary and Middle School.

Some kids change and grow taller a lot.   Time flies.....

Tomorrow we will have clinic visit and an IVIG to boost his immune system.

Please pray for everything well.

God bless us all!

Today is Day 157.

Brian and daddy stood in front of our VOH Church and greeted to Chinese congregations.

 Brian said, " Thanks for all of your prayer for me and our family. I am doing well. And I have starated to go to school 2 days ago."

 "Yeah!!.......... "congregations replied.

 " You are welcome to attend my Graduation Ceremony in Diamond Bar High School which is May 31st.", Brian said.

 Yeah!!! Applause filled with the room from uncles, aunties, brothers and sisters....................

Mark said, " Every Sunday, many of you kept asking me and Anita 'how's Brian?'   Doctor had allowed him to attend church.

 He came back to church  in 2nd floor English church last Sunday.   So we bring him here today to greet all of you and show our appreciation.

 It's not a easy journey indeed.  Through Brian, we changed a lot and it strengthened our faith.   We all experienced God's grace day by day.

 Thank you for standing with us and supporting us.   Looking at Brian, he is getting stronger in and out too. "

Pastor Kwan raised his hands to pray for Brian with congregations, " Hallelujah! Lord, we are glad to see Brian who is as same as our own child,

 seeing him walked through so many difficulties with strong faith. We believe he is not only getting stronger physically but also spiritually. His

faith is big as a giant. Lord, bless his family and all the work he will do in the future will be filled with your favour and grace. No matter his

academic work in school or the work after college. His whole life is destined to be your testimony to glorify your name in peers and influence

them. Lord, grant him health and fully recovery, especially his left eye will back to be normal. Grant his both eyes thoroughly bright and have

good vision. Make his spiritual eyes brighter to read through and get more understanding from your words to help and encourage his generation.

Bring more revival. Thanks Lord. In Jesus' name we pray, Amen!"

We are blessed to have this big family. We love you, VOH.

 God bless us all!

(Psalms 21:1-6)

1 The king will be glad in your strength, O Lord; how great will be his delight in your salvation!

2 You have given him his heart's desire, and have not kept back the request of his lips. (Selah.)

3 For you go before him with the blessings of good things: you put a crown of fair gold on his head.

4 He made request to you for life, and you gave it to him, long life for ever and ever.

5 His glory is great in your salvation: honour and authority have you put on him.

6 For you have made him a blessing for ever: you have given him joy in the light of your face.

(詩篇 21:2-6)

1 耶和華啊，王必因你的能力歡喜；因你的救恩，他的快樂何其大！

2 他心裡所願的，你已經賜給他；他嘴唇所求的，你未嘗不應允。（細拉）

3 你以美福迎接他，把精金的冠冕戴在他頭上。

4 他向你求壽，你便賜給他，就是日子長久，直到永遠。

5 他因你的救恩大有榮耀；你又將尊榮威嚴加在他身上。

6 你使他有洪福，直到永遠，又使他在你面前歡喜快樂。

Day 155   Another big step.  

1st day in DBHS Robotic class.  

Due to the STAR test this week, all the regular classes were changed to 30 minutes per period.

1:40PM. arrived school.  Gate B is still locked and no body around.   Maybe custodian is over another gate.

While we checked with attendance office, Mrs. Irving is outside the window.    Went out to meet her and walked to classroom.

Saw Mrs. Stacy walked and passed by.   Daddy said he saw them open the gate and looked around while we are in another gate.

Anyway, it's first time Brian met his GLC, Mrs. Irving, one of the nice ladies in school.

School nurse Mrs. Guest stayed over to see how he will be doing at school.    Nice!

30 minutes in class.    5 group in the class.   Kevin, Edward, Wayne,.... were in his group and Edward was talking about Yugio a lot.

After class, meet friends in front of school entrance.    There are Kimberly, Ian, Huy, and Brendon.

Willie and Vincent come over to our house to play for a while after school.  Fun!

In the evening.     1st time back to church BASIC cell group since last August.

Brian was so glad to see church friends and leaders Christina, Jessica, Jordan, and David.   

" Hello everyboday!!", he called when he got in the room while most of them were working on the poster for Pastor Baldwin's Birthday........

It's a good beginning.   Everyday will be a good day.

Today is Day 154.   A regular day.   Routine as usual.

The CHSPE emailed us to check the exam result online. 

Hallelujah!   Brian has passed the CHSPE exam.

Mr. Lares came today.   We shared the good news with him and talked about the coimg 1st day of school in DBHS which is tomorrow.

Kevin came over to get more idea on how to help Brian in class and school. 

Let's keep praying for Brian to have good energy and enough immune fuction to protect himself away from any germ and pollution in the air and the classroom.     He will finish lunch and med. at home befor go to school.    Kevin will be his gardian angel in classroom.    Pray for both of them, classmates, and teacher Mr. Hwang.

What will Robotic class about?    We'll find out tomorrow and let you know.

God bless us all!

In Jesus' name, Aman!

Today is Day 153.

Meeting in DBHS with IEP team and Vice Principle Mr. John Terry.

Dr. Kapoor's note said "Brian is able to participate in school activities.  If he is outside during recess hour, he must wear sunscreen and should be allowed to wear a cap and drink additional fluids throughout the day as some of his medications require an additional amount of fluid intake."

We are so blessed to have this wonderful team to take care student's special need.

We disscussed the senior activities, such as prom, senior breakfast, graduation ceremony,and even grad night in Disneyland.

For graduation will be a long process, Mr. Natividad will lead Brian and give a cue to the big time.

For experiencing the school class, Brian will start a Robotic class this Friday at 1:00pm..     

Let him try a little at a time ( just as our doctors always said).

School nurse Ms. Terry Guest takes care Brian's physical and health need.   She guided and remeinded Brian some enviroment obstacles when

Mr. Terry toured us the classroom and brought him to take a picture for Brian's student ID card.   He even gave Brian a cap with DBHS logo on it.

How nice!   We are so touched.   Thanks Mr. Terry.   You are so thoughtful and sweet.

Can you imagine how coincident it is while we tour the campus?   We met Brian's childhood buddy Kevin Camitta.   

God is so delicated to arrange this reunion for Brian.   We didn't know Kevin took the Robotic class and exactly same 5th period until we met him.   WOW!   Ms. Guest told me,   " See,  he is being well protected.    HE knows.   He is in control.    You can cry now.   It will be good to cry."

As parents, it's hard for us to let go our child especially after he went through so much.

Please keep praying for us to hand our everything to our Alighty God.

Pray the protection of the enviroment where Brian presents.

God bless us all,

Mark & Anita

Today is Day 151.     A beautiful day.

DBHS Ms. Woodward calls the meeting on this Wednesday 1:30pm.

Prar for everythings will fulfill Brian's wish and need.

Dear families and friends,

It's been almost 6 months since Brian's last attendance to our church Sunday Service.

We didn't let him go to last Sunday (Easter Sunday) service.   The reasons are 1. It's too crowded for so many programs and performances.   2. Doctor has not released the permission to public yet at that time.

Today is Day 139.    Regular clinic check up.

Dr. Chris Mahadio viewed the DBHS calender and told Brian that he is OK to attend "Prom", and all the senior activities and graduation.

"For attending school classes, we will dicuss later.   Maybe 2 weeks later.  I'll reduce the dose of tacrolimus from 1mg to 0.5mg.

Let's see how it works for you.    IVIG will be in 3 weeks before your prom."     But remember, no hugging, no kissing.    OK. Sounds good.

Today is Vivian's spring break. She came with us. Katherlyn didn't see her for a long time since BMT day.

Finished clinic, it's lunch time.  We met Kim (OT) at lobby.   She is passing by from new building to old building for her next appointment.  

"Hi Brian,  I just want to give you a quick hug.  Bye!"    "But.... Doctor said ' No hugging, no kissing', though.", Brian respond.    

" Whatever!", Kim waved and left.    A sweet big sister in Brian's life.   We love you, Kim.

Whenever we see her, we will expect to meet Sherry (PT) or Katy (ST).    We missed Amy (ST) too.   Wish her new life in SFO is well.

Sue and Stan's daughter, Mickey was in the lobby too.    " Great to see you doing so well, Brian."    " Thanks."