堅持信靠的Brian's Blog

November 13, 2012
Kim, my occupational therapist from the very beginning, seems to view me as one of her greatest accomplishments, as she played a very important part in my recovery. She is giving a presentation about how occupational and physical therapists can help with the quick recovery of a patient (or something like that) to students-in-training at USC. My testimony will be showing therapists that they can make a difference in someone's life. My life, is about to benefit, who knows how many other lives? Kim also interviewed me briefly, asking me what my next goal is. 
"My next goal?" i replied. "My next goal is to ride a unicycle around my college campus." 
"And what college is that?" 
"Hmmmm.... MtSac." 

Today is chemo day 32.

Thanks VOH Charlotte and Mike Acuno came to danate the blood and visit Brian.   He has a good time to meet and talk with friends.

Mom said, " I should arrange more visit and set up a daily visit schedule for you.   It help motivate you to get up earlier and dress up sooner."    " Yes.   It is too bored to stay in hospital.   I feel I am like an animal in a zoo.  People bring food to me ( room service).   People come to talk to me and check me up ( nurse & doctors).   Finally there are my peers show up.   Of course it motivates me to get ready to meet them.   You do need to set it up for me more often.  I like it.", said Brian.

 Some of you might have not known the blood donation we need.   I attached it as below.   It will be great if you can donate platelet and blood.   Thanks for your loving care and donation to help Brian's recovery.

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Dear Families and friends,

Dr. Gaynon ever said he's not sure one chemo or 2 before 2nd transplant.
He said he will let me know after the Counts recover and bone marrow biopsy and aspirated to show how this chemo work and he will decide the next step ( one more chemo or go to transplant directly).

Please pray.

Good morning,
Thanks for your prayer. Brian is doing good. No more fever and mouth sore. Sleep well and eating good. Today is after chemo day 20. His white count is still lowest (<0.10k/u).
We need to stay here until his white count recovers.
Doctor ever said it probably takes 6 weeks for white count to produce new cell. It means another 3 weeks around.
The infection last week they found is being treated by antibiotic. It will take 14 days to finish the medicines ( until day
29). Please pray for the count recovery soon and have very good Remission. ( They will check his bone marrow after his white count recover to a good level and ANC is ANC is greater than 1K).
Dr. Gaynon doesn't sure next step until the bone marrow tells. The BMT transplant team is waiting for Brian too. I hope they can catch the botan in a good and right time. No more delay.
May the Lord grants the best plan and date for his treatment.

God bless us all,

Mark & Anita

Something incredible happened today. Well, actually the story begins yesterday.
So I was talking with the librarians who come around every Wednesday, Carole and Linda, about Dr. Seuss's anti-war ideas in his cartoons and books. I knew a lot about them for some reason, and it all came to me so naturally. They'd never heard of the books that I'd talked about, but the general ideas that he had sounded familiar to them. Then today, Carole stopped by to confirm that what I had said yesterday, all of it was completely true. Then my mom remembered something.
As it turns out, the year I was diagnosed, I had done research for a project about Dr. Seuss for school. She remembered taking me to the library and getting a lot of books on Dr. Seuss for my project, and going online for more ⋯⋯

各位代禱勇士.

Brian今天早上要再做一次LP脊椎水抽樣檢查並同時注入化療藥的手術。

預計早上十奌左右全身麻醉來進行。請禱告抽出LP完全乾淨沒有癌細胞，並手術成功。

這次他們提早預備，現在是凌晨3奌，該給的血小板剛輸完，5奌左右會抽血驗看指數夠否以通知OR能儘早手術。

這是一個他們常做的手術，很多孩子都可以不必全身麻醉去被抽。Brian 上週曾試著醒著只局部麻醉去抽，但效果不佳，白被戳了好幾針, 結果還是得去正式手術房，那些專門做這手術的醫生畢竟還是經驗豐富些而且人手充裕，動作俐落明快. 記待週一的那次手術Brian 可把這些醫護人員逗得好開心,還唱好幾首歌給他們聽呢！我預備要請他們把過程錄下來，你可能想像手術室和術後恢復室有這麼多笑聲嗎?

我常在想，在醫院這樣的環境，我們這兩年來在這裡待了好多時間，這當中所經歷的各樣景况，甚至隨時得應付各種臨時排上的檢查，尤其禁食連水都不能喝整亇早上甚至要拖到下午，諸如此類的應変和適應能，可真虧我們一家原本就有一個彈性佳且不按條理出牌的特性，沒想到這一缺奌在醫院的文化裡卻成為生存之道。

生命是有無限可能的，Brian 常勸我，媽媽妳不要太擔心。是啊！選擇開心的去面對每一件事，讓我們在醫院的生活輕鬆有趣多了。醫護人員甚至圖書館的義工，廚房負責接電話奌菜和送餐來的工作人員都成了好朋友，而且彼此鼓勵。好感恩！

強力的化療藥在週日完成後，這兩天Brian 的皮膚顏色有變深楬色，身上有些紅疹，肝指數也上升好多。請為此代禱，能儘快回復正常數值。

感謝主！Brian 的精神體力都還不錯，上帝賜給他喜樂的心和純真的個性可眞是抗戰的本錢。各位熱切的禱告更是助益良多，無限感激！

希望今早的手術可早早完成而且順利成功。王崗叔叔說Brian是劉得勝，Albert 叔叔說要全面得勝！願今天又是美好的一天。

Mark & Anita