Today they decided that I could be off fluids! This means that I have leveled up, so to speak, another level in my freedom status-- I no longer have to lug around a wheely pole wherever I go. When I heard this news today, that one part in the song "Amazing Grace" popped into my head:

     My chains are gone,

     I've been set free,

     My God my Savior,

     has ransomed me…

Freedom is sooooo sweet.

So my mom brought udon noodles from home today. It tasted delicious, and even more so because I haven't had it in a while, and that it was home made. It felt good to be spending some time with my entire family. It lets me forget about my present situation and makes me feel normal again.

Brian

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In my devotions today there was a hypothetical situation in which you find the cure for cancer. My family felt that God was giving me a sign; a sign that I would be healed completely.
Today my white blood cell counts were really low; the lowest they've ever been. White blood cells, as you should know, are the defense of our bodies. So this means that my body, as of this moment, has no defense system. Pray that I can be protected from germs and disease and whatnot until my body is back to functioning normally.

Brian

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Heheh, today I woke up at around…. 3pm. >:D
God has been pretty good to me today.
Chemo finished yesterday, so the aftereffects are still effective in making me feel sick to my stomach. Still, I'm thankful that God hasn't let me throw up today, as I've had in times past.
In my devotions and the online sermon I listened to today, both said something about how what we say has the power of life and death. If God was trying to get my attention, well, let's just say that he's definitely got it now. I've been going through some very frustrating things in my life these days, and let's just face it; we say stupid things when we're frustrated. Perhaps God is warning me, reminding me, that what I say is not just words, but life-giving or life-condemning words. I think that God wants me to watch what I say, and whether what I say is helpful or harmful.
Because today's topic was about the mouth and life, I was reminded of last month, when I was going through coughing/breathing fits, I was praying with my dad for God to breathe the breath of life into me and I felt His breath on my face. Life starts from the mouth, and only by encouraging others
Because the words that come out of our mouths is so powerful, we have to be very careful with what we say.

Brian

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Chemo is now officially finished!
I slept a lot today. At least 16 hours. Still I had visitors. Glendy I.E. and Uncle Jim (our neighbor's neighbor) came to visit today. It actually wasn't planned. See, my mom went to Griffith Observatory (which is like, 5 minutes away) to check it out, and she heard people speaking in Chinese, and, well, this and that happened, and they ended up coming to see me.
Later on in the day (much later), Jesse and David " visited me. Not so much in the physical realm; in the cyber realm, more like. Thanks to Facetime and the wonders of Apple technology, we were able to chat face-to-face cyberically. <- If that's not a word, it is now.
Today, the lab report showed that my red blood cell count is very low. This would explain why I feel so tired and sleep until after noon. There will be a blood transfusion later tonight. Today, please pray that there will be no side effects, and that my immune system can go up very fast. Also, please pray for Justin, the infant in the other room. Pray that he and his family can come to know the Lord and be able to use his testimony to further the kingdom of God.

 

Brian

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Yesterday I checked back into the hospital. I also had a delicious cheddar/onion McChicken, but that's not important (Yes it is! Be quiet, appetite!). When we first checked in, my old room was full, and there were no other rooms save for double rooms,so I had an infant for a roommate. He was okay during the night, but as soon as the sun came up, involuntarily I found out about his toys. You ever see baby toys at Toys R Us or anywhere? Well imagine one that's broken and doesn't turn off. Now imagine a baby in the same room. Yeahhh, that's what I had to deal with. Today, there was a room vacancy: our old room, 4219!
God is very unpredictable. Sometimes he makes you have to guess what he's doing. This time I'm guessing that He wanted me to pray for someone other than myself, so He put this baby, Justin, in my life and paired me up with him for one night, listening to him cry, so that I, too, would know all the pain that he's going through. If you think about it, it's really sad, an infant going through chemotherapy. If it's this painful for me, I can only imagine how painful it is for him. But just imagine what a testimony this would be for Justin in the future! An infant who survives childhood cancer yet is still joyful! Yes, God is unpredictable, but He can still turn the most unfortunate events for His good.
Prayers for today: that chemo will be effective in destroying all the harmful cells in my body, and that Justin will be healed, and he and his family will come to know Christ.
Today's devotion actually is somewhat linked to my experience today!
There are three stages to the work of God: Impossible, Difficult, Done. -Hudson Taylor

Brian

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Dear all,

 

3 and 1/2 days at home was so comfy.

Today (9/22) will be the day 8th for chemo.We will check in CHLA this afternoon.

Our care manager told us the old room we have is still empty, hope we can get the same room today.

The chemo should be started at 6:00pm.

Please keep praying for

1. The success of this chemo with no infection, no fever, no side effect.

2. Stay be positive ( just as his blood type B+) in all procedures.

 


 

God bless us all,

Mark, Anita, Brian & Vivian

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Ever since I was discharged this May, I've noticed that I do things a lot slower than I used to do them. I walk slower, I talk slower, even the placement tests that I took over the summer mentioned that my biggest problem in school would be speed. I used to do so many things as fast as possible, and things I enjoyed doing involved speed as well. Like that time when we went to Speedzone, I was intent on going the fastest that I could. I mentioned this to my dad, and he told me this story.
There was a man who, in every aspect of his life, did everything as fast as he could. To him, speed was everything. But one day, he started feeling more tired. He still did things fast, it just made him tired. It didn't used to be like this, he remembered.
Then one day he had a dream. He dreamt that he was talking with the Lord. He asked the Lord, "I'm so tired these days. Why do I feel so tired?"
But the Lord only said to him, "Walk my pet."
The man looked, expecting to see a big dog to run with him, but no, it was a snail.
"Is this a joke?" the man asked. "This is a snail!"
But he was alone at a street corner. The Lord was gone. The only thing he had left from their meeting was the snail, and the leash. Sighing in defeat, he began to walk the snail. At first, he was frustrated with the snail, saying, "Come on! Walk faster!" But the snail paid him no mind. It was, after all, a snail. After a while, he began to calm down, and just happened to glance at his surroundings. He had walked with the snail to a garden. And he began to notice things; things he had never noticed before. Had scenery always been this beautiful? Did flowers always smell this good? He realized that he had never slowed down to enjoy life, that he'd always been rushing through, never taking the time to slow down and smell the flowers.
When the man awoke, he realized that his dream was a lesson. He did things much slower than he had before.
~~~~~~~~
My dad paralleled the man to me. Indeed, I was very fast-paced before, even to the point of being deemed hyperactive. But now, partially because of my health condition, partially because I enjoy doing things slower, I take my time to do things I normally wouldn't take time to do.

Today I woke up slightly earlier than usual (around 10ish). I groomed and did all the stuff people normally do, and then some. When I finished, it was around lunchtime. For lunch I had some Chinese foods that my mom cooked. I normally don't like it that much, but because it was home-made and fresh, it was delicious. While I ate, I did something that I had neglected to do these couple of days, that dreaded word: HOMEWORK. Algebra, English, and whatnot. Easy peasy.
Pastor Dennis came around noon today to say goodbye, good luck, and that he would keep me and my family in his prayers.
So I had two night visitors: Alvina and Kingsley. Oh, spellcheck, don't give me that. They're real names. Yeah, spellcheck's trying to convince me that I was trying to spell Alvin a. -___-
They arrived pretty late: around 8:XX. :/
At first we just talked for a while, then Kingsley said he was bored, so we played Monopoly Deal. Again. And then Alvina said she didn't like it either (Yeah! I'm not alone!) and somehow we ended up playing Scrabble. Anyways, by the time we finished, it was pretty late(r) so, yeah! That was pretty much my day.

   Brian

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So this is day two of my time home. My dad had gone out to get the medicated eye drops in the end, and I guess they worked, because my eyes no longer hurt when I look at a light source. Your prayers really helped! Praise God for that!
So today I woke up close to noon, as I have for the past month or so, so I guess it's now considered normal. My mom came home from her cell group meeting, and brought with her some dimsum. Ohhhh….. that delicious, savory, heavenly dimsum. I haven't had it in a while….
Anyways, I'm getting a little off-topic. Today I had visitors! Well actually Eric visited on Sunday, but it was pretty late when he left, so I think the next day I forgot to write about it…. Agh!! TANGENT. So today, Kimberly came to visit. We didn't really talk about much, but at the same time we talked about a lot. We basically just talked about whatever popped into out heads, and before we (or maybe it was just me) knew it, two hours had passed. It makes me miss the old days when we could talk every day. D':
Still, I'm glad she took the time to come see me before I go back for treatment. :)
Then, much later after sundown, Josh and Adrian came over. We played Monopoly Deal (against my wishes, I feel compelled to add). Adrian won (seriously guys, we could've been playing Wii!), and then they had to go. I have to admit, although Monopoly Deal is not very high on my list of things I like to do, I rather enjoyed the time we had together. Thanks, guys. Come back more often, yeah? :D
So I have just one more day left before I have to go back. If you wanna see me outside of a hospital setting, now would be a good time. Even if you wanna touch or even just look at my hair. Yes, as you can tell, I'm quite proud of my hair. :D
Prayers for today: that my last day home can pass peacefully and slowly, not quickly like when you enjoy yourself. Yeah, let that time fly someplace else.
Today's lesson in devotions: Forgiveness is not an occasional art, it is a permanent attitude. -Martin Luther

Brian

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Dear all,
  
We are home now.  Sorry, I should write to all of you last night.  But the moving was so tired.
It looks like moving from a dom.  A lots of stuff filled with the whole Jeep.  Thank you Eric for coming to see Brian last night.
We all rest the whole day with the yammy, loving food from dear auntie Betsy (uncle Billy's wife).  We appreciate it very much.
 
Brian is doing fine with good appetite.  The only thing is his eyes were hurting and sensitive to the light due to the new chemo.
Please pray for it. 
1. The red eyes syptom will gone soon and let him enjoy the day at home.
2. The day 8th and 9th chemo will start at 6:00pm. this Thursday.  Pray for the sussessful and no fever, no infection, no side  
    effect.
3.Pray for the God's protection and the chemo medicine only kill the leukemia.  Brian's heart, lung,
   liver,kidney,bone,brain,........all the body parts will be in good function.
4. Prepare both Brian and Vivian's heart for next step.  It is very stressful for the sister to be the donor.  Please pray hard for it.
 
Thank you very much.
 
God bless us all,

Mark, Anita, Brian & Vivian


 

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Hey everybody! I'm writing this from the comfort and sanctity of home sweet home. The doctors have decided that my ANC is high enough to let me come home for a few days. I will return to the hospital Thursday morning. It is infinitely more comfortable than the hospital.
On Saturday, I still had a little bit of a headache, and my rash (that the doctors suspect was from the chemo) faded a little.
Sunday was moving day! We spent most of the day packing, and when we finally got home, everyone was tired but happy. And, I could eat a lot more than I have for several days BUT, I'm finally losing some weight, so hey, it's all good. :):)
Today, waking up in my own bed was a great feeling, especially since I haven't seen or slept in my bed for like, a month. So it was good eating today. I ate a lot more than I have this week. Salty foods, too. I limited myself to sweet foods and fruit for the past couple of days, out of fear that I would throw up. But now I feel a lot better.
While much of this is good news, I'm sorry to have to relay the bad news as well. Since last night until now, I'm unable to look at bright things. I wasn't even able to look outside, much as I wanted to, because the sun was too bright. To me, even looking at a normal light feels like a laser being shined into my eye. This could resulted from the last chemo I got, the doctor says. My mom is going to go get some medicated eye drops later on tonight, so hopefully that will fix the problem tomorrow.
Prayer requests for today: That my eyes can, no WILL be able to return to the 20/20 status that it originally was, no pain when looking at things under brighter lights, and that when I start chemo on Thursday, everything can run smoothly and successfully. Stay in faith, everybody, and never lose hope.
Occupy your mind with good thoughts, or the enemy will fill it with bad ones: unoccupied it cannot be. -Sir Thomas More

     Brian

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