I think I'm starting to get used to being in the hospital with leukemia now. Like I did for most of 2008-2010, I ate a late breakfast at 10 today, did a little devotions, but overall, it was pretty uneventful today. However, my mom did mention that the doctor came in to say that I may do bone marrow transplant sooner than planned. This is a good thing-- the sooner I finish the BMT, the sooner I am free from the hospital.
Each day I joke to my dad that I have next to no hair and yet I use more shampoo than he does. Yeah, I take better care of my hair than my dad does. Right now, the place on my head that has the most hair would be… my chin. I have a goal, you know. My goal is to have a beard, just like Joe Ko. Yes, I'm serious. Joe, I want your beard. Teach me how to grow one like yours.

 Brian

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Dear families and friends,
  
Thanks for your continuing prayer.
Brian is doing much better now. No fever, no infection, and no more bad mood and thought.
Praise Lord! Now he has good appetites, good strength (both body and spirit),and good mood all the time.
Victorious! This infection brought him new skill to conquer difficult circumstances.
As most of you know he is a very strong will boy, his will is stronger then ever. He use his strong will to proclaim "Victory", hands on hands with daddy pray and pray even when he was hard to breath and cough a lot last week. Our will is stronger than our emotion. Brian and daddy learns how to reject the enemies's lies by praising God and proclaiming victory.
It's not easy, but they really did it. We are so proud of them. Our Heavenly Father must be very pleased too.
Romans 8:28. And we know that in all things God works for the good of those who love him who have been called according to his purpose.
This father and son's abounding and strong faith are "more than conquerors".
As a mom, it is so hard to see my baby's suffering. But through this, I saw God promoted my son and my husband to be real conquerors by abiding to the Highest Praising...............
Now they are more humble with soft heart and listening ears.
During the past week infection, daddy stayed in hospital 24/7 with Brian. ( I was in and out with Vivian )
I can tell daddy is so tired because he sit next to Brian or walked around him to pray for during the fever for almost a week. Finally, Brian agree to let me stay with him last night then daddy can have a full night rest at McDonald house with Vivian. Now I can really enjoy the sweet relationship with my lovely son.
His trademark Smiling is back. I know he really appreciates everything now.
Praise God! His though is higher than our thought.
  
Today's attending doctor just told me that Brian's blood is almost normal. The ANC is 770 today. The blood counts are climbing (platelets is a little bit low 44K, WBC1.58K,RBC3.34,HGB9.9).
They plan the next step will be "Bone marrow aspirated biopsy" on next Tuesday.
And then our primary Dr. Gaynon will discuss with Bone marrow team to decide there will be another chemotherapy or go ahead to do the transplant next.
  
Please pray hard for
1. The "Bone marrow aspirated biopsy" will get 0 cancer  successfully.
2. Dr. Gaynon and the Bonemarrow team will have the best plan for Brian.
3. Pray for all the procedures will successfuly and give Brian 100% recovery to be  a healthy and happy boy.
4. Pray for Brian and Vivian to prepare their heart and body for the transplant.  May God's proctetion and
    anoiting more on both of them. 
  
God bless you,
  
Mark, Anita, Brian & Vivian
 
 
親愛的家人朋友們,
 
感謝大家持續不斷地為Brian禱告,這兩天燒已退了,各項指數都邁向正常. 感染去除的同時,不好的情緒和思想也一起被趨趕走了.哈利路亞!

這十天看著兒子因在化療後抵抗力差以致細菌感染. 經歷了發冷發熱發燒.在抗菌過程血壓過低. 緊急輸血注入多種液體和抗生素之後導致肺部存積多餘的水,因而影響呼吸.................
感謝主.在這樣的過程中.父子倆緊抓住神.不住地禱告宣告"得勝". 我看見神在這當中得著榮耀.
Brian 在這當中就像個大能的勇士,即使因肺的積水不適,即使鼻子戴着氧氣輔助管且偶有咳嗽,他仍在最痛苦的時候,尤其半夜,不斷地宣告"撒但退去,我的身體是屬於 耶穌的.我奉 基督的名命令你離開我. 細菌出去........." 然後父子倆雙手緊握, Brian 對Mark 說"爸爸, 我們得勝了!" (這是發燒的第一個晚上,當ICU加護病房的六個醫生團隊因其血壓超低,一群醫護人員的陣仗可把父子倆嚇壞了. 拼命地禱告呼求神. 感謝主帶領他們做最好的判斷,緊急在這普通病房注入水液和血液讓血壓回升.......最重要的是不必轉去加護病房.一切都在神的掌握中, 讚美主!)
王崗叔叔說今後兒子多了一個小名叫"劉得勝".
在近一星期的三溫暖顫抖爭戰中. 持續讚美主....... 為人母的眼看着兒子的辛苦,還有丈夫因24小時服侍着兒子的疲 憊,實為不忍. 然而欣慰的是他們因此更同心更親近. 父子倆的信心和靈命更加提昇.我不得不囋歎--   耶和華的名被高舉. 耶和華的名是值得稱頌的. 就如同
羅馬書8:28 我們曉得萬事互相効力,叫愛神的人得益處,就是按他旨意被召的人.

如今父子兩更加柔和謙卑且更有能聼的耳和良善的舌. Brian 的招牌笑容回復了.
哈利路亞! 主啊! 我為此感謝讚美你.
 
 
感謝 上帝賜給我們各位天使陪伴.安慰.造就我們:
VOH Paster Kwan, Pastor Dennis, Pastor Hsiao.
感謝Esther 阿姨,妳做的歌陪伴Brian度過難關且給了他得勝的大能大力.
感謝維平大嫂的美食,不只溫飽了我們全家的胃,尤其幫助Brian食慾大開,掃除他多日來對食物的恐懼,難怪他趕快告訴她"阿姨,妳的食物醫治了我的胃口,謝謝妳."
感謝廣陸叔叔和Joanne,Rita 阿姨們來捐血和血小板.........
感謝境焜.Helen 無限的協助.
更感謝各位的造訪,來電慰問,和書信的鼓勵,支持,禱告.
 
今天醫生說Brian的指數已近乎正常. 下週二做骨髓穿刺檢測骨髓內的細胞確認是否0癌細胞.
之後主治Dr. Gaynon 將和骨髓移植的醫療團隊 商討下一步治療計劃-- 再化療或直接移植程序.
請繼續迫切禱告.
 
1. 為週二檢查順利且全無癌細胞.
2. 並求主給Dr. Gaynon 智慧.相信 主一定會給所有醫生最佳的智慧判斷,
   在最好的時機進全備完善的醫治.
3. 一切檢查治療順利成功.讓Brian回復活潑健康快樂.
4. 求主預備並保護Brian 和Vivian 身心靈. 在整個移植過程並一生為聖靈保守看顧.
  
願神大大賜福予你. 阿們!
 
Mark, Anita, Brian & Vivian

 

 

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Flying through the air, a bird pondered his place in the world. "What is my purpose? What am I?" At that moment, he spotted a crowd of animals on top of a mountain, gathered around an imposing door. Upon landing, he found them debating what to do with this strange portal in the rock. They didn't know what was behind it, but they knew that is was important that they reach it. "I am the lion," said the lion. "I will try to rip the lock open." But he couldn't.
"I am the snake," said the snake. "I will solve the secrets of its safeguards." But she couldn't. The bird did not hear them. He was transfixed by the door. He had found his reason for existing.
When he announced that he would open the door, they all asked how that was possible when no one else seemed able. So he told them.
"This is a turdoor. It is sealed with a turlock."
"I am the turkey."
When I woke up this morning I was greeted by the fact that somehow my diet had been changed to low-fat. When my dad asked why, they told him I had had diarrhea. Okay, first of all, I haven't had diarrhea since maybe last January, and I was in a pretty sorry state back then. Second, what good would a low-fat diet do for diarrhea? These were my thoughts when I found out that I had been put onto low-fat for "diarrhea". In the end, though, the doctor came in and informed me that he removed the order for a low-fat diet, said he had no idea why I had been put on it, and that if I got any bacon I should save him some. But seriously, WHY?? Okay, enough ranting.
Today, ANC (Absolute Neutrafil Count, a.k.a. immune system level) is at 0.43 today. Yesterday it was 0.19, so this means my ANC is going up, which is a good sign.
I am like the turkey, trying to find my purpose in life, or, more specifically, the purpose of my leukemia. When I know why, I can be used to "open the door" for all who wish to pass.
There is a living God. He has spoken in the Bible. He mans what he says and will do all he has promised. -J. Hudson Taylor

Brian

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Today was a day of significant victories. First of all, there were no fevers today and I needed no Tylenol (yesterday I needed Tylenol because I got 2 bags of blood, that prevents reaction to foreign blood), and coughing has decreased to normal coughs, as opposed to the violent coughing that I had previously. Also, I want to thank Uncle David Chia, Joanne I.E., and Rita I.E., who donated blood and platelets to me today and yesterday.
The doctor came in today to tell me that he felt that my breathing sounded a lot better, and that tonight I was going to be sleeping without the oxygen tubes. Another victory. :D:D
So today's devotions said that Jesus spoke of his defeat of the world in the past tense, like he had already achieved them. He didn't speak as if he was going to defeat the world, but as if he knew for a fact that he could not possibly lose. Likewise, I had been seen in a vision by others of myself in the future, giving my testimony to the multitudes. Victory has already been declared, so I have nothing to fear. No trouble comes your way that doesn't have something God can't use for good.
James 1:2 Whatever trouble comes your way, let it be an opportunity for joy.

Brian

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Sept. 4 (Sunday)
The doctor came to say the results of my x-rays that morning looked good, and noted that I looked a lot more energetic (I had gotten out of bed to brush my teeth; that was an improvement). Then the doctor mentioned that he'd known about me and all that's happened since December. He said that the change since then is truly a miracle.
Later, the nurse came in to explain the antibiotics they were giving me and I translated them all to my dad in Chinese. When I finished, I realized how hard the translators at church have to work to keep up with the pastor. It was tedious work, but it felt quite satisfying to hear myself translating that much.

Sept. 5 (Monday)
The nurse said that she got chills when I told her that Vivian was a 100% match for BMT. That is very rare, she said, and I am very lucky. No Jackie, not lucky, but blessed. Later in the day, my dad said that my forehead and my cheeks, which burn when I get a fever, is like half the Star of David. I just found that a bit interesting.

Sept. 6 (Tuesday)
Hyundai came to donate to CHLA today, and had a raffle for a new car. Originally, I was planning on going, but my immune system was too low today. Under different circumstances, today, Vivian would have a new car.
Around noon, Shelly came to see how I was doing. Shelly, for those of you who don't know, was my (first) PT from the beginning and got me walking again. We talked for over an hour. After that, Allison and 'Tavo (I don't know if that's how you spell his name, I just heard people call him 'Tavo), came to inform me about how Teen Impact (a group here at CHLA for kids who have had cancer when they were younger; for some of them, it's been years) was going to have live broadcasts online from now on so in-patients can participate too.
After they all left, the nurse came to check up on me and informed me that I was going to get 2 bags of red blood cells. For premeds I got some Tylenol, which made me sweat a lot. I must've changed sweaty shirts at least 3 times last night.

Sept. 7 (Wednesday)
Today was a day of significant victories. There were no fevers today, and Tylenol was taken only as a pre-med. I'm still coughing, but significantly less than before. I also received platelets today, without any side effects.
Angela Kwan said that she kindasorta had a vision for me, which was that I need to take it slow, and take it one step at a time, which made me think think of "One Step at a Time", by Jordin Sparks but I'm not about to break out into a song spontaneously. Then Pastor Dennis and I had a discussion on the significance of numbers used in the Bible. First, Joseph was 17 years old when he was sold into slavery. Not that God's gonna have me sold into slavery, but God used Joseph when hw was 17 years old. Dennis felt that this was a sign that God was going to use me for something great. Dennis, not to disagree with you or anything, but I think He already has.
Then, as we were talking about the significance of numbers, I realized that 7 is a number God uses for many important occasions. One, for example is Creation. Sure, the universe was created in six days, but God blessed the seventh, dubbing it a holy day. 
Revelation's judgments come in sevens: there are 7 seal judgments, then 7 bowl judgments, and lastly 7 trumpet judgments.
This time in the hospital I will be receiving some more chemo, thus bringing my grand total up to, you guessed it, 7. This is a prophetic sign that there will be no more after this. 7 is a number of completion.
Revelation 21:4
4 ‘He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away.”
-Brian

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These past few days I've neglected to update on my condition. The reason was that I came up with a fever and didn't have the strength to write all I wanted to. The first entry was written the morning before the fever emerged. I hope you all will appreciate these update, I spent a very, very long time writing this.

Tuesday, Aug. 30 (Morning)
"Today I studied Genesis with my dad. We learned some mind-blowing facts. In chapter 1, God never created water-- it was already there! This led us to wonder: maybe we weren't the first creation. Possibly there was already another universe that has already gone through what we've gone through, what we're going through now, and what we will go through. Then I noticed that God had to separate the light from darkness, meaning that light and darkness, were mixed together. That to me is unfathomable.
Then, moving on to chapter 2, I noticed that God created man by forming him with the dust of the ground. This reminded me of something I learned a long time ago: dust is actually dead skin flakes. Then God breathed the breath of life into his being."

Tuesday, Aug. 30 (Late at night)
My mom and I had a disagreement over the music I was listening to (the "Ghostbusters" theme song) and I got mad because she felt it wasn't appropriate for a time like this. I yelled at her that I wished I was dead, then ran out of the room, trying to get away from her. A nurse saw me and asked what was wrong. I told her that I wanted to find a soundproof room and scream my lungs out. The nurse dissuaded me from foxing so, and asked my mom to leave for a while. I told the nurse that I wanted to hate my mom, but I knew that wasn't right, so maybe I should have a couple minutes alone, to calm down, but my mom was not to enter until ten minutes have passed. The nurse agreed, but she'd have to leave the door open to make sure I wouldn't try to hurt myself. I agreed, brushed my teeth, and got ready for bed. When my mom came in, I told her not to talk to me until the next morning.

Wednesday, Aug. 31 (Midnight)
About 2-3 hours after the incident, I awoke at around 1am. I just couldn't sleep. Finally, I woke up my mom and apologized for my behavior earlier. She accepted my apology, then apologized for hers. I forgave her, and we hugged, said a prayer, said, "I love you", and went back to sleep.
Ephesians 4:25-26
25 Therefore each of you must put off falsehood and speak truthfully to your neighbor, for we are all members of one body. 26 “In your anger do not sin” Do not let the sun go down while you are still angry

Wednesday, Aug. 31
Around 3 or 4am, the nurse came in to take my temperature and blood pressure. I told her I couldn't fall asleep; I had been laying awake staring at the ceiling, trying to go back to sleep. After taking my temperature, she discovered that I had a fever. The commotion woke my mom up, and the nurse went to get some Tylenol. I told my mom that I regretted wanting to die when I said that earlier; I was just frustrated and didn't really want to die. At this point I was crying violently, and my mom tried to get me back to sleep, but I just couldn't. I mentioned this to my mom, and she got a chair and sat next to me, holding my hand, praying, and called my dad so we could pray together. We stayed like this until my mom felt my dad should get some rest so he could come take care of me the following day.
Fast forward to daytime; my parents and the nurses finally got my body to cool down. I can't really remember the rest of the day.

Thursday, Sept. 1
In the middle of the night, I got up to get a drink of water, when I felt something rising in my throat. I had had this feeling before. I tried to warn my dad, but before I could get two words out of my mouth, I threw up. Now, some of you may be thinking that throwing up gets the feeling out of the way. This may be true for a normal, healthy person who has not gone through 5 rounds of chemotherapy, but after chemo, you feel even worse after vomiting. It's even worse if you can smell it all over you. I vomited all over my clothes, blankets, and pillow. My dad and I quickly called for a nurse, and got me disconnected from all my tubes so I could change my clothes and my bedsheet, then went back to sleep. An hour later though, a whole bunch of doctors and nurses rushed in to check on me. I didn't really know what was going on, but when I heard that some of these doctors were from the ICU, I panicked and started worrying that I might have to go to the ICU again, and it'll be December 2010 all over again. Meanwhile, my mom, who was really at home but was talking to the doctor face-to-face, thanks to the wonders of FaceTime, was trying sort things out to know what exactly was going to happen afterwards and whatnot. In the end they decided that I needed more fluids, more platelets, and more red blood cells. When everybody left, my dad and I prayed that we would all come out of this victorious. Then, before we went back to sleep, I told my dad that the victory is already ours.

Friday, Sept. 2
In the morning, I woke up shivering and coughing. The shivering had been there for a while, but the coughing was new. They got x-ray to come up to get some shots. When the results came back, they discovered that I had water in my lungs, a result of all the fluids they were giving me, and that was why I had trouble breathing.
Fast forward to that night, my fever had gone up really high, and my dad was in no condition to take care of me that night (he had stayed up with me in a chair next to my bed all night, comforting me when I couldn't sleep, and watching the monitors to make sure nothing went awry) so my mom stayed to watch over me in the night, and when I couldn't fall asleep I prayed. I prayed for over an hour straight, declaring victory over my situation, rebuking Satan and his demons, and blessing all the people who were behind us fighting in this war with us. I had never prayed for this long before, but it felt refreshing to do so.

Saturday, Sept. 3
Today the inevitable finally happened: Haircut Day. I had been wanting to do this for several days already, because my hair kept falling out and tickled/itched everywhere, and just my swaying my head side-to-side I could feel that every single hair was loose. We had a lot of fun with the shaving-- my mom a little too much so. In fact, the day before I asked my dad to wet a towel and see if he could wipe off all the loose hairs. The end result, according to both my parents, made me look like Mao Tse-Tung. Anyways, I had my dad shave it into a mohawk, which made me look quite fierce, if I do say so myself. When the nurses came in to check vital signs, my mom insisted that they take a picture with me. After that, we had a lot of fun posing with me new (temporary) mohawk. When we felt we'd had enough, the nurse walked in with a printout of a unicorn. Oh, darn it! I had originally planned to have my dad shave of the back part of the mohawk and shape the remaining hairs into a unicorn horn. Oh well, what's done is done. Then my dad helped me take a shower, a luxury I haven't had for the past week. I felt much fresher, cleaner, and less itchy afterwards.
Coughing and difficulty breathing appeared much less today so I didn't need them to continually pump oxygen into my lungs, my energy felt much more replenished, and I could stand up and walk today, which made me dizzy the last couple of days. I believe that victory, once again, was achieved.

One last thing I wanted to share, yesterday when my dad and I were praying, my dad asked God to breathe life into me like he did to Adam, all the way back to Genesis. Immediately I felt wind on my face, which surprised me, so I opened my eyes and saw my dad's hand in from of my face, but it wasn't moving. The only possible explanation is that God heard our prayers and immediately acted. Not long after this miracle, we were still praying, but we noticed that the radio was on, playing worship music! My dad looked at me incredulously. He never touched the radio. In fact, he was sitting all the way across the room from it!

Brian

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They found out there is a kind of bacteria in his blood tonight.  It might be caused by his pic line.  
They treat him with antibiotic.  
Please pray for totally destroying the bacteria and his temperature back to normal and most important now is his blood pressure the lower one is too low.  The whole medical team just came by to assess the treatment plan.
Please pray for the blood transfusion smooth and helpful. Thank you very much.

God bless you,

Mark, Anita, Brian & Vivian

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Dear families and friends,
 
Thanks for your prayer.
Brian's 1st course Chemo was done last week.  Everything runs well.
Right now his blood counts (The white blood count, platelette and immunesystem) are very low.  
The 2nd Chemo will start after that. 
This morning he had fever and didn't sleep for the whole night.  The fever 39C for 5 hours since 4:00am.
Thanks God.  After the 2nd tylenol and antibiotic, the temperature is 37C now. 
Pray for no more fever and free of any infection, especially no leukemia cell.
I'll send you more update later.  You may also check his blog at http://gripoffaith.pixnet.net/blog  
Thank you very much.
 
God bless you,
 
MarK, Anita, Brian & Vivian

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Sometimes I think my posts are a tad serious. So, to lighten the mood, I think I'll share some mood-lightening thoughts I heard on the radio.
A woman was on a plane reading a Bible. The man next to her asked, "You don't really believe all that stuff is true, do you?"
"Absolutely," she responded.
"Even that guy who was swallowed by a whale? How can you believe that he lived for three days in there?" he scoffed.
"Oh, you mean Jonah?" The woman thought about it for a minute. "I don't know," she finally said. "When I get to heaven, I'll ask him."
"And what if he's not there?" he asked sarcastically.
"Then," she replied. "You can ask him."
Ba-dum ksh.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
So I slept until 1:30 today as a result of the medication Benidryl, which apparently prevents me from breaking out in a rash when I receive platelets, but also induces sleepiness. I'm very thankful for everyone's prayers that contributed to the success of the transfusion. Today I received platelets without "rashing out" like the last time. Praise God! Please continue to pray that my blood cells can return to the way God intended it to be. Let leukemia and/or infections be unwelcome in my body, so that my mind can be free from unpleasant, distracting thoughts to focus on God.

Brian

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Yesterday my dad showed me Mark 16:14-20.In that passage, Jesus talks about how faith heals a person. That whoever believes (and is baptized) is saved, but whoever does not believe will be condemned.
And signs will accompany the believers' faith: in His name, believers will drive out demons. Believers will not be affected by deadly poison.
Then my dad paralleled the "deadly poison" mentioned in verse 18 with chemotherapy. I've never really thought about how chemotherapy works or what it is exactly. So I went on to Wikipedia and "researched" chemotherapy.
It turns out that chemotherapy was first used in World War I during chemical warfare. This means that the elements used in World War I's chemical warfare was used inside my body! The realization made me feel sick to my stomach, but grateful at the same time. Taking life for granted has never occurred to me to be one of my flaws, but now I see that each day, undoubtedly, is a gift from God.
Jesus goes on to say, "they will place their hands on sick people, and they will get well." This to me is confirmation that I will get through this!

 Brian

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